What Would Mom Say?

A few days ago I went to a genetic counselor to update my preventative care plan for my PALB2 gene mutation. A PALB2 gene mutation is the third most high risk gene mutation for breast cancer, directly after the BRAC1 and BRAC2.

I was expecting to hear that I needed to keep up with my current plan: six month rotation between 3D breast mammograms and breast MRIs, but instead, my genetic counselor recommended a double mastectomy and a referral to a breast surgeon.

This recommendation comes from new research since the time I had my gene testing three years ago, as well as my family history and my mother passing away from breast cancer when I was so young.

I am still spinning from this news and quite scared. I am thirty-five years old and it seems quite drastic to have a preventative double mastectomy.

My husband and I have always agreed that we would do whatever was necessary for me to live the longest and healthiest life possible, but honestly I am struggling with this news. This was not in my big picture plan for this year.

As I have struggled with the news, I have thought about my mother. In 1990, if she would have had access to gene testing and preventative care, I think she would have done all she could. And if she was still living, seeing me mother my four children with this option to prevent myself from the years of chemo, radiation, and sickness she personally went through from the time I was seven until she passed when I was fourteen, I think she would say, “Why wouldn’t you spare yourself from what I went through?”

I am wrestling with what is biblical in my double mastectomy story. This is a pill very difficult to swallow. I trust God and I believe in His promises, but I am still unsure of what faith looks like in this situation. It feels so much more gray than black and white.

If you read this, please pray for Michael and I as we discern what is best for our family. I think Mom would say I should walk though this double mastectomy story for my health, my husband, and my family.

I am a hot mess of tears and emotion. I believe God is good all of the time, and I believe He is writing a good story for me. Thank you for being alongside me on this unexpected journey.

A Drive Down State Route 741

The windows to my minivan are cracked open and summer anthems play from the car stereo. Today my four kids and I drove from Kings Island to Miamisburg and back again. A hair over forty-five miles round trip.

On the drive I have passengers with me, three boys aged eight, six and five. All of whom would quickly clear their throats and add a half of a year to those ages I mentioned previously if they themselves were the tellers of this story; and a girl three and a  half. Her curls bouncing in the summer air and as untamed as her God-given personality.

As I drove down State Route 741 I drove passed my high school, junior high, elementary school, hometown ice cream spot, dentist office, my father’s work place and the mall where I had my first job.

As I drove down 741 I remembered so many summers of my mother driving a minivan up and down the same road, windows down, some kind of music loud. Me in the backseat at eight. My sister six and my brother aged four.

I have so many sweet memories of watching my mother joyfully drive as we sat behind her in the passenger seats of the minivan. She was singing, silly, vulnerable and wildly free. Driving up and down that State Route road to take us to ice cream shops, dance practices, movies, Kings Island. Her smile from the front seat was vivid in my memories as I cruised my hometown streets with my own children on this summer afternoon.

In my own nature, seriousness, order and work first, play later are the traits which make me tick. It is quite difficult for me to find spaces where I can completely let go and be free from my internal to do list. My straight hair which would never hold a curl is as indicative to my personality as the three year old who has the bouncy curls, the one whose curls are as untamed as her God-given personality.

As I drove today down State Route 741, it felt like I was driving though so many memories. So many spaces in the nooks of my memories where beneath the pain of losing my mother there are so many happy smiles. So many joyful times of being in the backseat of the minivan and experiencing my mother singing, silly, vulnerable and wildly free.

For so many summers I have wanted to push her smile away because it was too painful for me to remember. Pain is the process by which I can access these memories and as I walk through the pain, I find joy on the other side and a challenge to live life in the same way my mother did. To break through the mold of who I think I am supposed to be. To let go of seriousness, order and work first, play later. To let the windows down, sing a little louder and feel the summer breeze tousle my straightened hair for a time.

To step out of who I think I should be and remember the parts of my mother which brought me joy. This is the medicine I need. This is why a drive down State Route 741, windows down and summer anthems loud is good for the soul.

When The Memories Change

Sometimes it takes almost two decades for the memories to change from gray and back to color once again. Sometimes it takes years to walk through stages of grief and dig out from the walls you didn’t even know were callousing your heart.

Sometimes it takes years upon years to dig through the sadness to find that there was love and happiness underneath all of the grief. To remember there was once joy and smiles before the pain.

But the memories do change overtime.

At first I couldn’t even think about you. Recalling your laugh was a reminder of a life without hearing it ever again, the wounds of grief still freshly open, so I filed the memory of that laugh far away. So far I couldn’t remember it at all, so far I forgot about it for a time.

Later, when I thought I was ready to revisit your laugh, I pulled that memory out again. Only this time I didn’t feel the intense pain of that fresh wound, I felt sad. Tears came and that memory became a gray place for me to go when I thought of you. Your laugh which once brought me joy was now causing me tears. Every memory I pulled out of my time with you brought sadness. Every joyful moment we shared together brought tears. For a season I couldn’t even think of you without being sad or hear a story about you without crying hot heavy tears.

Then there was anger. How when I entered the season of marriage and having my own children, the anger came about how your laugh would never be heard or shared with them. Your presence and unconditional love through parenting four newborns in four years was deeply missed and I was actually quite pissed at you for not being her to help me hold and rock all the babies I could barely fit in my lap. And the anger that you missed tickling and laughing with my kids, blowing on their bellies or pretend gnawing on their chubby neck rolls. Anger. Hot red anger. The laugh that once brought me joy then, then it cause hot red, burning anger, festering with frustration about how this is just not the way it was supposed to be for us.

And then over time. On the other side of pushing memories away, the graying of them, the hot red frustration about them, the memories finally changed. Underneath the pain, the sadness and anger, once I dug out from underneath all of it I remembered the joy and the love.

I remembered your laugh and I wanted to talk with people about it. And the fullness of color, the clarity of sound, the way you smelled of Lancome’s Tresor. It all came back. The memories changed back when I was well enough to be thankful for the memories I was able to share with you. The tears still came but the tears were different.

And it is the joy that I know you want me to pass on to my family and others. Not the pain, the sadness or the anger. But the joy of your laugh. Your smile despite the battle you were fighting. The joy you showed me even when I knew you were angry too about the times you would miss with us. The stories that others share about you, now that I can hear them in full color I can see that you lived a life of joy in the midst of uncertainty and struggle. That what ties all the stories others share about you is your smile and your laugh.

When the memories change it is much easier to whisper your name to my kids over a bedtime story or hear them say your name in their prayers. It’s easier to tell them where I learned a group hug called a hunga-bunga, why I drive too close to the steer wheel, why we put red hots on Christmas cookies or even one day when they are old enough to tell them where they got that gene to use that curse word, the one you loved so much, at the drop of a hat.

When the memories change, it takes time, decades, seasons and stages but the memories do change back to reflect love. The sadness is still there but the sadness is quite different when it is seen through the lens of love. When the memories change on days like today, I can think of your laugh and be thankful for the times I was able to hear it up close and in person.

 

Unraveling Grief

This very week, nineteen years ago I was riding in the front seat of our silver Town & Country minivan with my father manning the wheel. I stared out the window as we drove down Sycamore Creek Drive, my eyes fixed on the greening grass that streaked alongside the concrete curb.

I was fourteen, six weeks shy of fifteen and my father was about to say something to me in the privacy of that car, a simple sentence which would change me forever. I knew the words were coming. Every adult around me had been locked and loaded with the words for weeks probably bearing the weight of them and waiting for just the right time to delicately let the words leave their lips hoping the words would come out like the gentle drop of a pin instead of like an earth shattering atomic bomb.

I felt the weight of the words before they were even said. I knew they were coming, I was preparing for the earth shattering atomic bomb. As I prepared for the news I rehearsed the best way I knew how. Just like anyone would prepare for an air assault, I toughened up my exterior and pulled up my bootstraps. I was going to face the worst but appear like a strong fortress, absent of emotion, cold, but protected.

As I stared out the window, I heard my father say, “Rach, mom is going to die.”

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The words enveloped me. I had prepared for this exact moment and I responded in the best way I knew how. I kept staring out the window and all I could reply was, “I know.” As I stared and attempted to let disengagement consume me I felt warm tears begin to cover my eyes, turning the strong streaking line out my window into a blurry green blob, even mixing up sometimes with the grayness of the curb.

Staring at the green gray blob became too much so I drew my gaze in and I caught my reflection in the window. I saw the tears in my eyes reflected back at me and immediately I remember being overcome with disappointment in myself for not holding it together enough. For not being strong enough. For not preparing well enough emotionally to handle the news. And then the shame flooded in. I knew if I could see my reflection, my father could see it too. I knew he knew I was crying. I didn’t want him to know I was weak nor did I want to appear too emotional.

I felt the responsibly to be strong and brave in the waves of uncertainty and the shattered earth beneath my feet.

So the best I knew how I tried to go back inside my fortress to hide from my pain. I built walls. I hid behind a heavy mask and protected myself with layers of armor.

The armor I hid behind looked different in different seasons. In high school my armor was a tough girl exterior. I don’t think I wore it well but I flirted with rebellion, disengagement, relationships with men, drinking and recreational drugs. Anything I could get my hands on to help me escape my pain, I tried it. But my fixes weren’t fixing. My band-aids weren’t able to hold together the still open wounds underneath the armor and the masks.

I became exhausted from hiding beneath the bad to the bone girl I was trying to be in high school so in college I tried on some new ways to hid my pain from the world. For a season, during my days at Eastern Kentucky University I tried on the armor of busyness. Twenty-two hours a semester, 4.0s, overly-involved, mentor, sorority girl, chair of the committee, changing the world kind of busyness.

I never wanted to be known as the girl with the hard story so I ran from my hard story. Buried it so deep it even became difficult for me to remember my actual mother. I spent so long trying to be strong and burying pain that I lost even the happy pieces of the times I shared with her.

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Brene Brown writes in her book, Daring Greatly,

“When we don’t acknowledge how and where we are tender, we’re more at risk of being hurt.”

I had spent so many years hiding from where I was tender that I wasn’t even sure anymore how and where I was tender.

Brown also goes on to write from her own experience,

“Slowly I learned that this shield was too heavy to lug around, and that the only thing it really did was keep me from knowing myself and letting myself be known. The shield required that I stay small and quiet behind it so as not to draw attention to my imperfections and vulnerabilities. It was exhausting.”

From my own experiences in unraveling my grief over the loss of my mother I could not agree more. I spent so many years hiding behind strong personas, I forgot who I really was. I lost myself. And I felt isolated because I never let anyone know the real me. And I didn’t have my mother present to tell me how to snap out of it.

For so many years I hid and then I lost myself. I felt like a balloon, not tethered to anything at all, just floating around.

It has only been in the last five years that I have been able to slowly unravel my misconceptions about my grief. When you are fourteen you think you know everything about the world and about strength but truth is I knew so little about strength, I knew nothing about it at all.

I thought strength and vulnerability were like that greening grass and the hard concrete I saw streaking outside the window on that April morning. Two very different things which before I felt tender I believed would never blur.

But it turns out, today I believe strength and vulnerability are actually a lot like the blurry blob of grass and concrete I saw out my window when I was feeling tender. To see them both blurred together as one thing. That strength requires vulnerability and it takes a whole lot more strength to be vulnerable than it does to pretend that you can just keep marching on and hide beneath armor and masks.

Now I understand that to hide my pain is not strength at all. It is weak, cold and inhuman.

So I have loosened the bootstraps, tried to get rid of my solider boots all together and I am slowly unraveling unhealthy patterns.

I am trying to be more tender. To learn and remember where I am tender.

I am trying to remember my mom. To cry and sometimes shout to myself, “It sucks that my mom is not here.” Sucks is not apart of my regular vocabulary but it seems to fit there for now.

When I let myself remember the emptiness I feel when I think about her it helps me remember that this life is just not the way it is supposed to be and I long for heavenly places where there is no more crying and no more tears.

I try to talk about my mom with my kids because they ask about her.

I try to remember my mom with my brother and sister. Though my vulnerability with them causes tears. I can only share a little and try to remember the blurring vision my tears cause and what I believe that means. Grief is not black and white, or green and gray streaks or little neat steps. I can’t check off the boxes when it comes to my grief.

Grief is jagg-ed and criss cross with both hard edges and smooth shining surfaces. Grief requires a constant unraveling of our hearts.

I try to sit and wait with a hurting heart. I wait because if I try to bandage it on my own, I will never truly heal. I sit and wait on a Good God who sees me while I wait and promises He will bind up the wounds, I only need to wait and be still. (Psalm 147:3)

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In the jagg-ed and criss-cross places of grief, I have unraveled enough to know now that it’s okay to lean into uncertainty and earth shattering grounds, to be tender and broken, exposed and known because I don’t have to appear strong at all. That I can delight in the broken and tender places. It is there where I find God glorified. It is there where I see him holding all the threads of myself together. Taking away threads of misconception and binding me up with His promises to me and His truth.

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And I’m not all the way redeemed in my grief. I still have so much more unraveling to do. I may have only begun to chip away at the surface. But I have so much more hope. I know there is a real and good God at work in my heart because I never could have been called out from behind the armor on my own. Little by little God is working on me. Making me more aware of where I am tender and helping me see that to grieve is to simply be human.

Strides For Shelley

2016 will be a year of running in memory of my mother, Shelley Cronin. In 1998 when I was fourteen years old my mother lost her battle to breast cancer at the age of forty-one.

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Now at the age of thirty-three, married and with four kids of my own I feel like I desperately need to do something in my mother’s memory.

Every day as I parent my three sons and only daughter is another day I feel the emptiness of her not being here. The missing of her seems to get worse the deeper I find myself in the trenches of motherhood.

Not only because I wish she was a phone call away when someone has swallowed toilet water or if I can’t remember how long the cut-out cookies need to bake in the oven but most of all because I feel empty and sad about what she has missed. What my kids have missed. Oh how she would have loved them, gobbled them up, and tickled them in their hoochie-coochies (a weird name she named our most ticklish places… I know.)

For the last three years I have been training for and running half marathons. I have trained for three and crossed the finish line at three. I am not a fast runner, I’m someone you will see trotting alongside the road and wonder if you should scoop me up in your car and drive me back home, cover me in ice packs and tell me to never commit that type of horror again.

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This year, I am running for a cause and because I am not a very good runner it will take me all year long. I am calling the campaign, Strides for Shelley.

My goals are to run two marathon races: The Flying Pig Half Marathon in May (completed) and The Air Force Full Marathon on September 17, 2016.

I have no idea if I can run 26.2 miles in my own strength and effort but I know with your support, your prayers and the great motivation of Strides for Shelley, anything is possible.

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After the Air Force Full Marathon on September 17,2016 I will be culminating this journey at the Cincinnati Race For The Cure on September 24, 2016, an emotional race for sure. I have set up my fundraising page through Susan G. Komens’ Race for the Cure site so all donations will now go directly to my local Susan G. Komen Chapter.

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If you’d like to join me, train with me, or start your own team please contact me. It would be a great honor to see so many others make Strides for Shelley too. You can train alongside me near or far.

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So this is it. A normal mom, wife, woman trying to make a difference and dream big in memory of someone I love and miss dearly in 2016.

Will you help me make Strides for Shelley?

Race For The Cure Donation Page